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KMID : 1160420210030020061
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Epilia: Epilepsy Commun
2021 Volume.3 No. 2 p.61 ~ p.67
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Felt Stigma in Korean Persons with Epilepsy
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Lee Sang-Ahm
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Abstract
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Korean studies of felt stigma among persons with epilepsy were reviewed. Of persons with chronic epilepsy, 31% felt stigmatized by their condition and in 9% of these individuals, the stigma was severe. Of persons with newly diagnosed epilepsy, 31% felt stigmatized at the time of diagnosis, but the corresponding percentage decreased to 18% at a 1-year follow-up. Multiple regression identified experiences of actual discrimination in society, an introverted or neurotic personality, and inadequate coping strategies as being independently associated with felt stigma. Seizure-related factors did not contribute to felt stigma in persons with epilepsy. The presence of felt stigma has considerable impacts on psychological well-being, including depression, anxiety, and poor health-related quality of life. These findings may provide a basis for further studies to clarify the causative factors generating felt stigma and to develop potential therapeutic interventions for felt stigma of epilepsy. In conclusion, nationwide educational programs are necessary to eliminate misconceptions about and negative attitudes toward epilepsy, which still remain present to a considerable extent in Korean society.
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KEYWORD
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Epilepsy, Social stigma, Social discrimination, Depression, Quality of life
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